Support groups

There are currently 5 Meningioma UK support groups in the UK.

Romford, Essex
Host: Kamilla Gleisinger
Venue: Lipscombe Room, Salvation Army Centre, High Street, Romford, RM1 1JJ
Further information: enquiries@meningiomauk.org.uk or 01787 374084

Ashford, Kent
Meningioma UK Kent Support Group meetings suspended till further notice.

Enfield, North London
Host: Sue Scott
Venue: Community Room, London Borough of Enfield, Enfield Town Library, 22 Church Street, Enfield Town, EN2 6AX
Further information: sue@meningiomauk.org.uk or 01787 374084

Cambridge
Host: Ella Pybus
Venue: Cambridge Cancer Support Centre, The David Rayner Building (Scotsdales Garden Centre), 120 Cambridge Road, Great Shelford, Cambridge, CB22 5JT
Further information: support@meningiomauk.org.uk or 01787 374084

Lancashire
Host: Rachel Gibson
Venue: Friends Meeting House, Meeting House Lane, Lancaster, LA1 1TS
Further information: rachel@quaycreative.co.uk or 07752 243876
Download poster here

Other groups:

AMNET: The Acoustic Neuroma and Meningioma Network
This Cambridge-based group,  for patients with Vestibular Schwannoma (Acoustic Neuroma) or auditory nerve meningioma has quarterly meetings.

Brainwaves, Belfast
Venue: Samuel Irwin Lecture Theatre, Royal Victoria Hospital, Belfast
2nd Wednesday of each month except July, August, December, 7.30pm
Co-ordinator: Kate Ferguson on 028 9337 2505

Brain Tumour Support (formerly Hammer Out) support groups
Staffordshire | Walsall | Birmingham | Coventry | Worcestershire |  Herefordshire | Gloucestershire | Bristol | Somerset | Hampshire | Dorset | Devon | Cornwall

Irish Cancer Society
Support groups information
National helpline: 1800 200 700

Coventry Social Club
Venue: Walsgrave Hospital, Clifford Bridge Road, Coventry
Monthly, open to all patients diagnosed with a brain tumour, families and friends.
Contact: Ian Edwards on 024 7653 5757

Edinburgh
Venue: Maggie’s Centre, Western General Hospital
1st Tuesday of the month at 7pm. No meetings in January or July.
Contact: Alice MacGregor on 0131 334 3609

Glasgow
Venue: Beaston Oncology Centre, Western Infirmary
2nd Monday of the month at 7.30pm
Contact: Sheena Muir on 0141 942 4475

Hertfordshire
Kathy Stakounis is organising a group to take place in Hertfordshire.
Contact: The Brain Charity helpline 0845 450 0386 for more information.

Huddersfield
Venue: Peregrine House, 7 Brooks Yard, Market Street, Huddersfield, HD1 2EP
Contact: The Brain Charity helpline 0845 450 0386 for details

Ipswich
Contact: Cancer Support Centre at hospital for details.

Leeds, Cookridge Hospital
First Tuesday in the month, 6 – 7.30pm
Contact: Samantha Wilson, Neuro-Oncology Nurse Specialist on 0113 267 3411

Liverpool, Neurosupport Centre
Norton Street, Liverpool, L3 8LR
Dates vary, usually quarterly, between 7pm to 9pm
Contact: Tony Murphy, Patient Support Worker or Maureen Kelly on 0151 298 2999 or maureen@neurosupport.org.uk

London, St Thomas Hospital
Richard Dimbleby Centre, 2nd Floor, Lambeth Palace Road
For those, aged 16 – 45, diagnosed with a brain tumour.
Alternate Mondays 2pm to 4.30pm
Contact: Barbara on 020 188 5918

London, Bloomsbury Healthcare Library
Venue: The Resource Room, Bonham Carter House, 52 Gower Street
Support group for low-grade glioma patients, family and friends                          1st Tuesday every month, 6 – 8pm
Contact: Emma Townsley, Neuro-Oncology Clinical Nurse Specialist on 0845 155 5000 ext 724122 or emma.townsley@uclh.nhs.uk

London, GMAC – for Gay/Bi Men affected by cancer
Venue: Dragon Hall, 17 Stukeley Street, WC2B 5LT
2nd Wednesday of the month 7 – 9pm. Emotional support and information Run by Jose Veiga, Chair, London Friend, a charity supporting the LGBT community.

Newcastle upon Tyne
Venue: Conference Room, Regional Neurosciences Unit, Newcastle General Hospital
1st Wednesday each month from 2 – 4 pm. Not August.
Contact: Macmillan Neuro-oncology CNS, 0191 233 6161 ext 21060

Norwich, Big C Cancer Centre
Venue: Norfolk and Norwich University Hospital, Colney, Norwich
First Wednesday of the month 1.30 – 3.30pm for patients and carers
Contact: 01603 286112

Oxford
Venue: 1A Ridgeway House, Hagbourne Road
For children with a brain or spinal tumour and their families. Run by Oscar
Contact: 01235 816310

Southampton, Headstrong monthly groups
Headstrong: for those diagnosed with a brain tumour
Headstrong Friends: for carers
Contact: Headstrong, PO Box 1127, Southampton SO16 4WL, 07747 194585 or headstrongheads@aol.com

Southampton: British Acoustic Neuroma Association (BANA)
Quarterly meetings on Saturday mornings
Venue: Queen Alexandra Hospital, Cosham, and Southampton General Hospital
Contact: Jenny Benger on 023 92 581845

Portsmouth
Check with hospital for details

Surrey, Royal Marsden NHS Trust
Downs Road, Sutton
Carers’ group: OPD waiting area – contact Douglas Guerrero on 020 8661 3036
Patients’ group: Richard Wells Rehab Centre – contact Helen White on 020 8661 3038
3rd Thursday of the month at 7.30 – 9pm.

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