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Useful websites for British and North American organisations
NB - information on the web is totally unregulated and anyone can write anything. This means that although there is good information there is also a lot of misleading and possibly unnecessarily frightening material out there. Watch out too for the snake oil merchants and other 'miracle' cures. They want your money - Don't get ripped off!
BBC website gives clear brain facts and brain map guide
Straightforward explanation of how the brain functions & a diagrammatic brain map you can click on:
http://www.bbc.co.uk/science/humanbody/body/factfiles/brain/brain.shtml
Brain Tumour UK The main brain tumour national charity offering support, information, education and research.
Annual conference held in July. For full details and booking form contact the Helpline 0845 4500 386 or enquiries@braintumouruk.org.uk
Or visit the Website: braintumouruk.org.uk for information and fund-raising events
CancerBackup
A well-established national support group for cancer patients, good content, plenty of diagrams and explanations. www.cancerbackup.org.uk
AMNET Acoustic Neuroma and Meningioma Network
Eastern counties self-help and support group of former and new patients and carers based in Addenbrooke's Hospital, Cambridge
Website: AMNET-charity.org.uk
Alison Frank 01953 860 692
Brain Tumour Action BTA
Scottish group meets in Edinburgh, Glasgow, Aberdeen, provides information, education days and lectures. Excellent guide to understanding brain tumours and brain structures. http://www.braintumouraction.org.uk
Ellie's Trust
Fund-raising group. For children & young people affected by a brain tumour or brain disease in East Anglia. Well-organised site with lots of information, links and fund-raising news. Good pictures. http://www.elliestrust.org
Epilepsy Action
British Epilepsy Association aims to improve quality of life, promotes interests of people living with epilepsy. Information, advice, equal opportunities. A valuable and user-friendly site. http://www.epilepsy.org.uk also email: helpline@epilepsy.org.uk
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REST OF THE WORLD
Australian website for Melbourne University Hospital and Medical Faculty recommended by Clare Holtham for the quality and clarity of the information:
http://www.neurosurgery.com.au/index.html
North American websites
Meningioma Support and Information
Comprehensive U.S. website for support and information. Almost too much to read. A site to browse. Includes some good links.
http://www.meningioma.intranets.com
Meningioma Mommas
American 24/7 online support group "bringing hope, friendship and laughter to all those affected by a meningioma brain tumour"
www.meningiomamommas.org
Al Musella's website:
A magnificently comprehensive and important source of information on all types of brain tumours and on up-to-date treatment information, current research & trials.
http://www.virtualtrials.com
Brain Tumor Foundation of Canada
Funds brain tumour research, provides patient and family support services, and educates the public. Excellent, well-written site with lots of useful information and graphics. Easy to navigate. http://www.btfc.org