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Useful websites for British and North American organisations
NB
- information on the web is totally unregulated and anyone can write
anything. This means that although there is good information there is
also a lot of misleading and possibly unnecessarily frightening
material out there. Watch out too for the snake oil merchants and other
'miracle' cures. Don't get ripped off!
BBC website gives clear brain facts and brain map guide
Straightforward explanation of how the brain functions & a diagrammatic brain map you can click on:
http://www.bbc.co.uk/science/humanbody/body/factfiles/brain/brain.shtml
Brain Tumour UK The main brain tumour national charity offering support, information, education and research.
Annual Two Day national conference held in July. For full details and booking form contact the Helpline 0845 4500 386 or enquiries@braintumouruk.org.uk
Or visit the Website: braintumouruk.org.uk for information and fund-raising events
CancerBackup
A well-established national support group for cancer patients, good content, plenty of diagrams and explanations. www.cancerbackup.org.uk
AMNET Acoustic Neuroma and Meningioma Network
Eastern counties self-help and support group of former and new patients and carers based in Addenbrooke's Hospital, Cambridge
Website: AMNET-charity.org.uk
Alison Frank 01953 860 692
Brain Tumour Action BTA
Scottish
group meets in Edinburgh, Glasgow, Aberdeen, provides information,
education days and lectures. Excellent guide to understanding brain
tumours and brain structures. http://www.braintumouraction.org.uk
Ellie's Trust
Fund-raising group. For
children & young people affected by a brain tumour or brain disease
in East Anglia. Well-organised site with lots of information, links and
fund-raising news. Good pictures. http://www.elliestrust.org
Epilepsy Action
British
Epilepsy Association aims to improve quality of life, promotes
interests of people living with epilepsy. Information, advice, equal
opportunities. A valuable and user-friendly site. http://www.epilepsy.org.uk also email: helpline@epilepsy.org.uk
Travel Insurance
The
Insurance Surgery is an Independent Financial Advisory service that
has, since 1999, specialised in finding travel and other insurance for
clients who have pre-existing medical conditions. Online travel
insurance quotes can be obtained 24/7 by using their unique 'Travel
InsuranceWizard'.
http://www.the-insurance-surgery.co.uk/travel_insurance.php?ref=130
REST OF THE WORLD
Australian website for Melbourne University Hospital and Medical Faculty recommended by Clare Holtham for the quality and clarity of the information:
http://www.neurosurgery.com.au/index.html
North American websites
Meningioma Support and Information
Comprehensive U.S. website for support and information. Almost too much to read. A site to browse. Includes some good links.
http://www.meningioma.intranets.com
Meningioma Mommas
American 24/7 online support group "bringing hope, friendship and laughter to all those affected by a meningioma brain tumour"
www.meningiomamommas.org
Al Musella's website:
A
magnificently comprehensive and important source of information on all
types of brain tumours and on up-to-date treatment information, current
research & trials.
http://www.virtualtrials.com
Brain Tumor Foundation of Canada
Funds
brain tumour research, provides patient and family support services,
and educates the public. Excellent, well-written site with lots of
useful information and graphics. Easy to navigate. http://www.btfc.org